Follow up after another Pet Scan

4 09 2013

Well as usual I will start with saying that I am sorry for being such a poor blogger.  I know I take too long between posts but here is my latest update.

 I went for my first pet scan since my last surgery and I am following the same path!  Yep another abnormal scan.  I pray that one day they will tell me ya your scan is normal but until then I just take one day at a time.  My last scan showed more enlarged nodes in my armpits and neck, and another new adenoma/tumors.  They are not sure if the cancer has spread again or not but they want to rule out other possibilities first.  There are only several reasons for enlarged lymph nodes, cancer, infection, autoimmune disease, hormone imbalance, rheumatoid arthritis.  Lab results ruled out any type of infections and no rheumatoid arthritis.  I guess I should be thankful that I don’t  have the marker for rheumatoid arthritis.  I am seeing a surgeon in two weeks to run more tests to see if it is possibly an autoimmune  problem like lupus or lymphoma or   cushings syndrome.  Cushing syndrome is a disorder that causes abnormal amounts of cortisol.  The cause of cushings if typically caused from an adrenal adenoma.  Yep I have developed a tumor on my adrenal gland.  I guess the mass found last time in my lung and in my pelvis were lonely so they reproduced.   Typically these adenomas on the adrenal gland are non functioning and do not cause problems however  there are some that are functioning and if this is the case I will have to have it removed.  I am pretty sure they are going to run out of things to remove before long.  Can you imagine if someone digs me up from my grave in a 100 years….They probably won’t know what I am due to all the missing parts.  

On a more serious note.  I am feeling good and I still have my happy, crazy sense of humor so I guess all is good today and most likely will be good for a while.  I will keep everyone posted on my next set of test results.

Oh, I almost forgot.  I just received the new quarterly Lymphoma network magazine and they published the article I wrote.  If your interested in reading it there is a link at the bottom right side of my page. 

I can not thank everyone enough for all your support and prayers.  God Bless you all

Patty