Recovering from Surgery

15 01 2013

I can not tell everyone how sorry I am that it has taken so long to post this but recovery has been long.  I am doing well but it was a bit rough as I not only had the surgery I also had a touch of the flu!  All I could do is take pain medication and sleep and I felt absolutely miserable.  I am doing much better, over the flu and beginning to heal.  I am swollen, big belly but that is to be expected.  I start back up with the lymphadema clinic next week to get the fluid retention under control.  I also have an open hole in the right side of my abdomen that I have to pack but hopefully it will begin to close soon.  The pain in my abdomen and pelvic area is now tolerable so I have stopped the pain meds, they were making me crazy!

On a good note.  I could not be more thankful for all the prayers and support.  I am giving credit to all of you for your prayers as I believe that is what has helped me get through this and saved me.  I found out that all the lymph nodes above the enlarged nodes were free of any cancer.  They took out 15 nodes higher up in the lymph chain on both the right and left side.  This means they will do a follow up in three months and if there still is no cancer I will not need to do any additional treatments.  Yea I am so excited.  I am gong to beat this and its all due to your prayers being answered.  Thank you just is not enough, I will be eternally grateful to all of you.

I also want to mention all the wonderful people I have met along the way.  I met a very nice family in St. Louis the night before my surgery.  I pray they are doing well and that the father/husband is also doing well.  Thanks to Sr. Mary Alice for having Father hold several masses for me.  Thanks to the hockey family.  Thanks to everyone at Healogics and I am so bummed I missed them all this week at our quarterly meeting.  Thanks to the Barreiro family for the nice messages that put a smile on my face when I was feeling so bad.  I love you all.

In the world today they say it is hard to find true friends, honest and sincere people but I have been blessed with all of you and it is all of you that make the world a better place.

God’s Messengers

The unexpected kindness from an unexpected place,

A hand outstretched in friendship,

a smile on someone’s face

A word of understanding spoken in a time of trial

Are unexpected miracles

that make life more worthwhile.

We know not how it happened that in an hour of need

Somebody out of nowhere

proved to be a friend indeed….

For God has many messengers we fail to recognize,

 but he sends them when we need them,

and his ways are wondrous and wise….

So keep looking for an angel

and keep listening to hear,

For on life’s busy, crowded streets,

you will find God’s presence near.

Aurhor: Helen Steiner Rice

You are all Angels sent from God………





Surgery day 1/3/13

3 01 2013

It’s evening! Where has my day gone? Whew those meds are good or I am a serious light weight. Well I will have to speak to the doctors tomorrow as I don’t remember anything today. Mitchell said it all went well. I had my surgeon and an obgyn surgeon work together to remove the pelvic lymph nodes on both my right and left side. I only have 5 incisions, less than the 8 I was expecting. I also was seen today by two dermatologists who decided To biopsy some of this crazy rash/welts that continue to spread and itch like crazy. I do have stitches where they did the biopsy so I guess all in all I do have 8 incisions. I am not sure but I think the surgery took about 4 1/2 hours. I’m glad it’s over and look forward to getting back to normal, crazy normal, life.

As for experience here at Barnes Jewish Hospital it has been excellent.

Thanks to Mitchell and Clair for hanging out with me at the hospital. Love you
Thanks sooooo much Susan for stopping by. I am sorry I missed you and I am very grateful for the bag of goodies. This will definitely help me get through this.

Thank you again for all my family and friends, YOU ALL make my journey so much easier. Love you all.

When you think you’ve reached your limit, ask yourself thus:
“can I go just one more step……”

And you always will find that you are able to take just one more step……..

And one more after that…and another after that one….

Keep Going!

Thanks for waking with me.





Follow up 12/22/12

22 12 2012

Follow up 12/22/12.





Follow up 12/22/12

22 12 2012

Well here I am with yet another plan for treatment….What….Yes thats what I said.  First I am scheduled for surgery then the surgery is cancelled so that we can do the BRaf testing and start treatments.  Now I am told that Mayo clinic said there was not enough tissue on the tissue block to do the Braf testing. So once again the surgery has been re-scheduled for January 3rd.  I am meeting with the surgeon in St. Louis on the 2nd to discuss the new treatment plan after the surgery.  OK well this is what I think.  Life is short, Life is full of unexpected twists and turns, we can not control the situations that surround us but we can control how we respond to those situations.  As Sister Mary Alice said we need to just live in the NOW.  I choose to be happy, make the most of every situation, as even the most stressful and trying situations offer us great wisdom.  As for me I have learned that we should not stress over our future plans as they may change, we should be patient as God will take care of us if we just slow down  and enjoy the moment that he has blessed us with.  Look for our the blessings that have been delivered to us as sometimes God gives us gifts we miss while we are stuck spending our time dwelling on the negatives and what if’s and why.

I am so thankful for all the family and friends who have taken the time in their busy life to stop and be supportive to me and my family.  We really never know how blessed we are until something happens, like being diagnosed with cancer, that we see just how much love surrounds us. This love that swells in my heart is a feeling that I can not put into words but it is truly the best gift anyone could ever receive.

While I am saying thanks I would like to add that this Christmas would and should have been a tough one as we have lost a husband, father to my children, we lost a grandmother who was not only a grandmother but a best friend.  The feeling of loss saddens our hearts but our hearts have been filled with love and support that overflows the once empty heart.  Thank you to all my friends, even those who I have not seen or spoke to in a while, Jane Mikell, and for all my neighbors who help me out daily, to all the Dominican Sisters at  Sacred Heart Convent who have taken us in, especially Sr. Mary Alice who is like another grandmother who has taken us in as if we were her own flesh and blood.  Thank you too for all the prayers from my dear friends / Franciscan Sisters out at the Mother House who pray for me regularly.  thank you to my family at St. John’s Hospital who have all been so supportive, and for my dear friends and co-workers at Healogics who take care of all my needs and much more.  Then last but not least thank you for my family and friends who take care of me and helping me and the boys daily, this includes the family at the WCC, the new Hockey families, and all of my close friends, both near and far.  I am sure I can not mention everyone but know each and everyone of you are special to me, reside in my heart and I think of you all every day in my own daily reflections.   THANK YOU ALL FOR BLESSING ME AND MY FAMILY WITH YOUR LOVE AND FRIENDSHIP.

The Gift of Friendship by Helen Steiner Rice:

The Gift of Friendship

Friendship is a priceless gift that

cannot be bought or sold

But its value is far greater than a mountain made of gold-

For gold is cold and lifeless,

it can neither see nor hear,

And in the time of trouble it is powerless to cheer.

It has no ears to listen, no heart to understand,

It cannot bring you comfort

or reach out a helping hand-

So when you ask God for a gift, be thankful if He sends

Not diamonds, pearls, or riches,

but the love of real true friends.

God Bless You All

 

 





Follow up 12-14-12

14 12 2012

Well here I sit with nothing new to share.  Wow the worst part of this whole thing is the waiting.  My Braf testing is still not back from Mayo Clinic.  I guess it could be another week or two!  On one hand this could  mean no bad news before Christmas on the other hand the waiting is agonizing.  I am feeling pretty good so I can’t complain.  I have made plans for Christmas.  The boys and I are going to get up early and we will volunteer again this year to serve breakfast at the overflow shelter or the salvation army, whichever needs us.  This is such a great way to begin your Christmas morning.  This is the day to give your time, share your heart, be thankful for what we have and for what we can do to help others recognize what they have to be thankful for.     Later we will return home for a delicious home cooked meal and time sharing stories with family and creating new memories that will be cherished for many years.

I have included a couple new links at the bottom right side of the main page.  Please take a moment and click on the links.  I have recently included a link “Phil’s Friends”.  Please take a moment to check this site out.  This is an amazing group of individuals who help provide faith-based support and encouragement to those fighting cancer.   They have been so encouraging, I receive the most precious letters from children who have taken the time to draw pictures and write encouraging inspirational messages, jokes whatever they think will brighten my day and it does.  It is amazing to know just how much love is out there in the world.  If I could ask for one Christmas wish it would be to have everyone support a non-profit organization this year.  Can you spare an hour this year?  Can you spare a dollar?  The smallest gift whether money or time spent working with an organization will make the difference in someone’s life.

God Bless You All.

Quote:

As I live each day

May I do my part

To make a difference and

touch one heart

Each day it is my goal

To bring smiles & Laughter

into a soul

(author unknown)





Follow up on Pet Scan 12-5-12

6 12 2012

basket

Well as you can probably guess things don’t always work out the way they are supposed to in my world.  There was a miscommunication with scheduling my pet/ct scan so it did not happen today but it will happen tomorrow!  On another note I want to say thank you to our Risen group.  This is the greatest group of friends and today we met and they brought me the greatest gift. They put together a great pair of soft cozy PJ’s, footsies, Bath essentials for relaxing, music, books and each item was accompanied by a special note from each member of our group.  This was truly a gift from the heart and brings tears of joy as you all are angles sent to help me through this.  In the event I spend some time in bed I have some very good books that will definitely bring a big smile even if I’m not feeling to good.  Thanks Mary Jo, Joan, Sara, Rhonda, Lynn and Cathy.  As for all the other friends/angels in my life I am thankful to each one of you.  I have another group who I must say thank you too as well.  Before I started this blog I went through a couple of surgeries and the last one was tough but thanks to all my friends/angels at Healogics they provided consistent support.  They sent cards, gift certificates, food, flowers, donated PTO time, you name it they did it and it really kept my spirits up, they are all so wonderful.  I can’t say it enough but I am truly blessed to have so many wonderful people in my life.  I sometimes feel like I don’t deserve so much kindness.  Thank you all

God Bless You:

Irish Blessing

May you always have walls for the winds

A roof for the rain

tea beside your fire

Laughter to cheer you

Those you love near you

and all your heart may desire





Oncology appointment in Springfield 11-29-12

30 11 2012

Well today was a little disappointing!  I found out that my surgeon is St. Louis received my pathology slides but they can not do gene testing on slides so he has to request the tissue block.  This means a delay of at least 10 days to a couple of weeks for results.  In the mean time I am just setting here in limbo waiting to see what drug I can get.  The longer I wait the more my cancer can grow.  On a good note my new spot does not seem to be anything to worry about.  I think the hardest part of having cancer is waiting to see WHAT IS NEXT.  I am ready to start treatments so I can get this over with and move on to a normal life.  I guess I am not sure what normal is but it has to be better than living in the dark.  SO lets all live for today, make the most of it, and treasure your family and friends.

I am going to continue to work on this site so if you have any information that would be beneficial to share on melanoma please let me know.  I also have added a Photo gallery of my journey and surgeries so far.  The photos are not pretty but it give you an idea what I have gone through.  The link is at the top of the page.  If you click on the music player it will play a beautiful song while the slide show plays.  The song is by Chris Tomlin, “Whom Shall I Fear” from his new album Burning Lights.  Chris has a beautiful voice and his songs are amazing.  If you like him he will be performing here in Springfield at the convention center in March.

Blog Quote: (not sure who the author is but I like this)

Where there is no Struggle     There is no Strength