Follow up 12/22/12

22 12 2012

Follow up 12/22/12.





Follow up 12/22/12

22 12 2012

Well here I am with yet another plan for treatment….What….Yes thats what I said.  First I am scheduled for surgery then the surgery is cancelled so that we can do the BRaf testing and start treatments.  Now I am told that Mayo clinic said there was not enough tissue on the tissue block to do the Braf testing. So once again the surgery has been re-scheduled for January 3rd.  I am meeting with the surgeon in St. Louis on the 2nd to discuss the new treatment plan after the surgery.  OK well this is what I think.  Life is short, Life is full of unexpected twists and turns, we can not control the situations that surround us but we can control how we respond to those situations.  As Sister Mary Alice said we need to just live in the NOW.  I choose to be happy, make the most of every situation, as even the most stressful and trying situations offer us great wisdom.  As for me I have learned that we should not stress over our future plans as they may change, we should be patient as God will take care of us if we just slow down  and enjoy the moment that he has blessed us with.  Look for our the blessings that have been delivered to us as sometimes God gives us gifts we miss while we are stuck spending our time dwelling on the negatives and what if’s and why.

I am so thankful for all the family and friends who have taken the time in their busy life to stop and be supportive to me and my family.  We really never know how blessed we are until something happens, like being diagnosed with cancer, that we see just how much love surrounds us. This love that swells in my heart is a feeling that I can not put into words but it is truly the best gift anyone could ever receive.

While I am saying thanks I would like to add that this Christmas would and should have been a tough one as we have lost a husband, father to my children, we lost a grandmother who was not only a grandmother but a best friend.  The feeling of loss saddens our hearts but our hearts have been filled with love and support that overflows the once empty heart.  Thank you to all my friends, even those who I have not seen or spoke to in a while, Jane Mikell, and for all my neighbors who help me out daily, to all the Dominican Sisters at  Sacred Heart Convent who have taken us in, especially Sr. Mary Alice who is like another grandmother who has taken us in as if we were her own flesh and blood.  Thank you too for all the prayers from my dear friends / Franciscan Sisters out at the Mother House who pray for me regularly.  thank you to my family at St. John’s Hospital who have all been so supportive, and for my dear friends and co-workers at Healogics who take care of all my needs and much more.  Then last but not least thank you for my family and friends who take care of me and helping me and the boys daily, this includes the family at the WCC, the new Hockey families, and all of my close friends, both near and far.  I am sure I can not mention everyone but know each and everyone of you are special to me, reside in my heart and I think of you all every day in my own daily reflections.   THANK YOU ALL FOR BLESSING ME AND MY FAMILY WITH YOUR LOVE AND FRIENDSHIP.

The Gift of Friendship by Helen Steiner Rice:

The Gift of Friendship

Friendship is a priceless gift that

cannot be bought or sold

But its value is far greater than a mountain made of gold-

For gold is cold and lifeless,

it can neither see nor hear,

And in the time of trouble it is powerless to cheer.

It has no ears to listen, no heart to understand,

It cannot bring you comfort

or reach out a helping hand-

So when you ask God for a gift, be thankful if He sends

Not diamonds, pearls, or riches,

but the love of real true friends.

God Bless You All

 

 





Follow up 12-14-12

14 12 2012

Well here I sit with nothing new to share.  Wow the worst part of this whole thing is the waiting.  My Braf testing is still not back from Mayo Clinic.  I guess it could be another week or two!  On one hand this could  mean no bad news before Christmas on the other hand the waiting is agonizing.  I am feeling pretty good so I can’t complain.  I have made plans for Christmas.  The boys and I are going to get up early and we will volunteer again this year to serve breakfast at the overflow shelter or the salvation army, whichever needs us.  This is such a great way to begin your Christmas morning.  This is the day to give your time, share your heart, be thankful for what we have and for what we can do to help others recognize what they have to be thankful for.     Later we will return home for a delicious home cooked meal and time sharing stories with family and creating new memories that will be cherished for many years.

I have included a couple new links at the bottom right side of the main page.  Please take a moment and click on the links.  I have recently included a link “Phil’s Friends”.  Please take a moment to check this site out.  This is an amazing group of individuals who help provide faith-based support and encouragement to those fighting cancer.   They have been so encouraging, I receive the most precious letters from children who have taken the time to draw pictures and write encouraging inspirational messages, jokes whatever they think will brighten my day and it does.  It is amazing to know just how much love is out there in the world.  If I could ask for one Christmas wish it would be to have everyone support a non-profit organization this year.  Can you spare an hour this year?  Can you spare a dollar?  The smallest gift whether money or time spent working with an organization will make the difference in someone’s life.

God Bless You All.

Quote:

As I live each day

May I do my part

To make a difference and

touch one heart

Each day it is my goal

To bring smiles & Laughter

into a soul

(author unknown)





Oncology appointment in Springfield 12/4/12

5 12 2012

Hello to everyone,

I hope everyone is doing well.  I went to the oncologist again today and found out that my tissue block was received at Mayo clinic for the Braf testing and I should get the results either Friday or Monday.  The oncologist in St. Louis has a couple different studies he is looking to put me into once we have these results.  I am ready to start some type of treatment.  I have been having pain in my back and stomach and I now have two new bumps that have developed along the bottom edge of my ribs.  This was a little concerning so I am scheduled to have another pet scan tomorrow.  I am looking forward to just starting treatment so that I can be on my way to getting back to good,  and a normal healthy state.

Father God,

Enlighten what’s dark in me…

Strengthen what’s weak in me…

Bind what’s broken in me…..

Mend what’s bruised in me….

Heal what is sick in me…

Amen

Happy Heart Daily Inspirations





Patiently waiting

26 11 2012

I hope everyone had a nice Thanksgiving. I am thankful for a great weekend with family and friends. I am now patiently waiting for the results of the gene testing on my tumors. I am praying I have this B Raf gene as I think this sounds like my best chance for beating this terrible cancer. I am not looking forward to the side effects of the drugs but I do look forward to living as I have a lot left to do in this life.
Thanks to all if my family and friends for the support you show me daily and the strength you give me. I am truly blessed.





Happy Thanksgiving

22 11 2012

Happy Thanksgiving to all of my friends and family. This day and every day be thankful. I am having a good day with my family and will be enjoying a great meal soon. I am thankful for God granting me so many special people in my life, thankful for my family and hopeful there will many many more Thanksgivings in my future. God Bless you all.





Hello world!

16 11 2012

Welcome to my first post

I hope this will be a good way to let others know how I am doing and what it is like to go through treatments for stage 4 nodular melanoma.  I will try to post as often as possible but fortunately I have a crazy busy schedule so it may get put on the back burner on occasions.  As for now I want to say welcome and that I am wishing everyone has a happy and memorable Thanksgiving shared with family and friends.