Month Two of Tafinlar and Mekinist completed and starting on month 3

5 04 2016

Well Here is my 2 month update on the two chemo medications that I am on, Tafinlar and Mekinist.  Month one I started developing vision problems so I went off the medications for 2 weeks.  I went t…

Source: Month Two of Tafinlar and Mekinist completed and starting on month 3





Month Two of Tafinlar and Mekinist completed and starting on month 3

5 04 2016

Well Here is my 2 month update on the two chemo medications that I am on, Tafinlar and Mekinist.  Month one I started developing vision problems so I went off the medications for 2 weeks.  I went to see an eye doctor who did many tests and scans and decided that I had developed vitreous syneresis of both eyes.  I understand that this can occur normally as we age however, it looks like the medications have caused this to happen quickly in both eyes.  The eye doctor agreed that I need to watch for flashes of light or streaks of light and if this happens it means that I have developed a retinal tear.  If a tear occurs I will need to bee seen immediately in the office.  So I have very blurred vision and I am now forced to use readers!  I also floaters that drive me crazy.   Luckily, I am allowed to go back on both chemo drugs. I must now see both my oncologist and the eye doctor every month.

So here I am.  I restarted both chemo treatments and at the end of month two I went to see both physicians again.  I have developed more floaters in both eyes and the chemo has caused the development of cataracts in both eyes.  I can continue to take the medication for another month.  My oncologist is really happy that I seem to be tolerating the treatment as well as I am!  I am not sure what he expected to happen with me but I am not so sure I agree with him.  I am going into the second week of month three and more symptoms are beginning to appear.  As I have said before I am documenting my experience with the Tafinlar and Mekinist chemo and it may be different for others.  I have noticed that my eyes are still getting worse, the constant pain that I live with seems to be getting worse.  I feel very nauseous and my stomach hurts all the time.  I get a bloody nose every day and every time I blow my nose, I am starting to get headaches daily, I have developed a severe cough, sinus drainage into my chest, and lastly I am experiencing extreme fatigue.  I typically only sleep a couple hours at a time due to me being in pain and that continues but I am taking many more frequent naps.  So I guess that means that the chemo must be building up in my system so lets hope it is working.  I did go to see my family doctor and to let him know that I was no longer able to control my pain as it was getting worse.  He just suggested I continue on the current medication for now.  I actually thought something was wrong or changing until I began to read the drug interactions for the new chemo drugs.  It appears that the pain medication is less effective while taking the chemo drugs.  Good news I am probably not getting worse, bad news it looks like I may not be able to control my pain while on the chemo!  I see both my doctors in two weeks and then I will have another pet scan early in May to see if everything looks good.  I am hopeful that everything will look good and that I will only have to do the chemo for 6 months.  I am so ready to feel a little more like myself again.

On a much lighter note I am blessed to have drug options as there wasn’t much when I was first diagnosed.  The development of new cancer drugs is helping many people live longer and their quality of life is so much better.  I am hopeful that one day there will be a cure but until then I will stay positive.  I am blessed with so many wonderful friends, great doctors and the love of the Lord.

Something I read and is part of my daily life…..Not sure who the author is.

Pretending to be happy when you’re in pain is just an example of how strong you are as a person.

I am one very strong person and I will never give up………

  • Stay Strong………………………………Pray for Strength
  • Love others………………………………Pray for peace
  • Be still and let God do his work………Thank God for what he has given us
  • Enjoy the gifts God has given us…….Praise God and be thankful
  • Remember we are never alone………God walks with us through the good times and tough times.

Pray…..Pray…..Pray……Pray and be thankful





1 month of Chemo Completed

23 02 2016

What does one month of chemo feel like?  I am sure this is a question that is answered differently by each person who has taken chemo.  I can only say what it has been for me.

The first week I did not feel much different but by the second week I began to feel some changes.  I began noticing changes in my vision.  I first noticied it was getting harder and harder to read items on my phone.  This was not to alarming at first but by the third week I could no longer read anthing up close that was in small font.  According to the side effects noted on the informational incert from each drug this seemed to be a somewhat common experience.  I also began to have terrible stomach cramps, diahrea and vomiting.  The cramps would come after eating and soon the diahrea would follow.  I would on occasion have vomiting as well.  Once again this was a side effect noted on the insert.  So far not to much that was alarming.  I then began week 4.  No changes here just an increase of the frequency of diahrea.

I followed up with my oncologist, had all my blood work done and discussed the side effects of the chemo.  The labs had some slight changes but nothing alarming so that was good.  My oncologist is concerned at how quickly I have begun having visual changes.  He has opted to have me discontinue the chemo for one week, until I have had my appointment with the eye doctor.  He wants to ensure there is nothing more serious causing my visual changes.  If the appointment with the eye doctor is good then back on the chemo and with lab work and scans to follow in another 4 weeks.

I am hopeful that I will go back on the chemo next week and that my lab work continues to look good.  If for some reason there is another reason for my visual changes then we will have to address that before continuting chemo.  In a way this is good as I really want a break from all the stomach cramping and nausea.  I am strong and I know that this is only a small side effect that is temporary.  I know that in the end I will be much better.  I am, as always, so incredibly thankful for all my family and friends who have been supportive throughout my journey.  I am also thankful for the days that I do feel good.  The days are fewer and fewer but in time it will get better.  I could feel more blessed and fortunate for having a good day last saturday.  I had a wonderful suprise 50th birthday fish fry party, the Springfield Kings Bantam hockey team won their game in the semi finals for the Missouri state title and the weather was warm and sunny.  I guess you can’t ask for anything more than that.  I was surrounded by family and friends and fortunately for me I did not get sick.

I pray that for any others who are reading this and either begining treatment or have recently started treatment.  I pray that you will have few if any side effects.  I pray that if you do have side effects that you keep your physician updated of changes immediately.  I pray that one day all of us will be able to say that we are NED, (no evidence of disease).  I pray that all those who are suffering from cancer will get the appropriate care so that we can all say we are survirors.

Appreciate every day, say “I Love You” more often, start your bucket list and begin enjoying life as it is to short.  Don’t miss out on all the fun times, the memories you should be creating and never never take tomorrow for granted.  Love with all your heart.

God Bless You and may we be blessed with another day.

 





Day 3 of Chemo Treatments

27 01 2016

Source: Day 3 of Chemo Treatments





Day 3 of Chemo Treatments

27 01 2016

Well Day 3 of chemo and I am only feeling a little more tired than usual and I am having a headache.  I guess not bad so far.  As with any drugs there are side effects and Headaches, muscle and nerve pain, fatigue and just some of the common symptoms.  I hope that it doesn’t get any worse than this.  Im sure that is just wishful thinking; one can hope!

I am thankful today for all those who have been and are sending prayers.  I also pray that everyone who is experiencing health issues is also feeling the healing hands and prayers they need to get better.

I pray that the Lord watch over all of those in need of healing.  God Bless all of you who have prayed for me.  Life is short so live each day as if it is your last. Find at least one thing you are thankful for each day.  Say I love you more often.  Never go to bed angry. Pray often and when you wake know that God has blessed you with another day.

 





New Beginning: getting ready to ride the waves of a new storm so that I can reach the warm sunny days ahead

24 01 2016

Tomorrow starts the beginning of ending my time with caner.  I will always carry the scars that will remind me of the time we spent together.  I will have a new found ability to appreciate and enjoy every moment that I am blessed to have with family and friends.

I find it so hard to understand the why’s, the how’s and the what could I have done to prevent the ugly and debilitating disease of cancer.  The truth is none of us who have had cancer or who will get cancer may never get the answer to these questions.  The one thing we can all take away from the experience is nothing short of a beautiful miracle that allows us to make the most of the time we have here on earth.  Too many people spend their days working, stressed out, overbooking their schedules or being just plain lazy.  We fail to make time to relax, to call, write or visit family and friends.  We take waking up each day for granted.  It is those actions that cause to many people to go through life too quickly with few cherished memories.  Those of us who have been blessed with cancer manage to make time for the things that are important such as appreciating every minute of every day.  We make a point to catch up with family and friends, check off all those wish list items, tell others we love them…… We make memories for us and for all those who spend time with us.  For the select few of us who can say wow I am a cancer survivor I pray will continute to cherish each day because each day is a gift weather we have cancer or not.  I can say I am happier for this life and for the sincere friendships of those who stayed true to me/us in times of need.

I have been blessed with so many wonderful people in my life and as I go through these next few months I will do my best to continue to keep in touch with everyone.  I will post blogs so others can keep up with me and many more who I have not met can hopefully find encouragement and strength from my words.

I recently got together with a friend that I had not seen in a while.  To my surprise not only did she just finish with a double mastectomy, chemo and radiation but her husband also just finished chemo, radiation and surgery for cancer.  It really is sad to see just how many people are affected by the many different types of cancer.   I plan to continue to keep in touch with my friend and her husband and many others.  I may only be able to talk on the phone, through a text or a blog but I will make a commitment to make some sort of contact with friends.  For those who are really close family and friends I will do my best to visit them or have them visit me.  I am also turning into the crazy and annoying picture person.  I either take pictures when I get the chance to get together with friends or I have them take pictures and send them to me.  I have begun putting together albums with these pictures.  I have also been having fun with my youngest son going through some of these picture albums and reminiscing with him.  You can not believe just how fun it is.  We laugh, we ponder and we cry sometimes but it is something that will keep the mind and spirit filled with joy.

On a totally different note I always like to be prepared, expecially for days that may not be so good.  I am going to put in a big plug for a local business and internet business.  I have always been one to make sure that my family has a good home cooked healthy meals each day.  I may be able to continue this throughout my treatments if I get sick.   If the day comes that I can’t do the cooking I still wanted my family to have good home cooked meals.  We have a a business where I live called “lets make dinner”.  This is a fun place where groups can go and make up good home cooked meals that they then put into freezer containers with labels that have the directions to heating/cooking the meals at a later time.  While this is fun to do with friends or even kids it is also a place where where the employees also make dinners along with the groups. The employees freeze their meals and customers who can’t come in and make up meals.  Anyone can just stop by and buy the pre-made meals. If you want to ensure they have the dinners you want you can also call or email them with this dinners and side dishes you want each month and they will make them up.  You can come in to the business and pick them up or they will even deliver them to your home.  Wow what a great idea.  So if I do get sick I plan on having a few pre-made dinners on hand so my family will still eat a good healthy home made dinners.  I also have done a lot of research on some of the online dinners you can order and then cook at home in your own kitchen.  My youngest son loves to cook which will make this a good option for us as well.  I have found through my research that the best rated online dinners are with “Blue Apron”.  Here you can buy healthy dinners with ingredients that are fresh for the season and they are grown locally.  You can choose from different menus each month with no obligations or commitments to join a club.  This is a little more expensive than “Let’s Make Dinner” but much more fun and healthy for those who like to cook or want to learn to cook.  Blue Apron allows you  pick the meal you want to but and the number of people you want to serve.  Blue Apron will then send you the step by step guide to cooking it.  The kit comes with the exact portions of each item needed to cook the dinner.  What fun.  The menus change monthly and before you know it you will have a chef in your own home making great meals.  My family is almost hoping I don’t feel well so they can experience cooking without the hassle of going grocery shopping.

The link to “lets make Dinner”:  http://www.letsmakedinner.biz

The link to “blue Apron”:   http://www.blueapron.com

Ok enough babble.  I start chemo tomorrow,  I have meals made and meals ordered, I have this blog to keep family and friends updated on my current experiences with chemo and a checklist of those I want to keep in contact with during this adventure.  When this is over I hope to be cancer free, in the habit of staying in contact with family and friends, enjoying every day and hopefully helping others who may be going through the same thing.

 

God Bless and may we all find happiness in our hearts.

 

 





Time..Yes The Time Has Come..!!!

5 01 2016

Source: Time..Yes The Time Has Come..!!!








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